NOT ENOUGH
In
Enough: Staying Human in an Engineered Age, (2003) Bill McKibben
elegantly contends that human genetic engineering, nanotech and robotics will
demoralize individuals and derail societies.
He writes, for example, of futuristic highly-skilled classical pianists
or athletes who know that their parents purchased strong musical or athletic
genes for them, and of the existential crisis caused regarding the source
of, and credit for, their respective
accomplishments. He says democracy will
become untenable if some use these technologies to create a master race. McKibben
asserts that we can stop these developments by saying, “Enough” and urges an
immediate international dialogue because
genetic manipulation is just around the corner.
His warning is, at once, an
exaggeration and an understatement.
It’s
an exaggeration because we are still a while
(vagueness deliberate) away from having a clearer sense of which genes
influence many traits. It’s also an
exaggeration because many, including New
York Times science writer Natalie Angier and the biophysicist/editor of Redesigning
Life, Brian Tokar have observed
that, to date, gene manipulation efforts reveal that genes can’t often be
simply cut and pasted, one for another, especially without causing weird side
effects.
It’s
an untimely understatement because McKibben scarcely addresses genetic screening-- and its
companion, eugenic abortion-- or in vitro fertilization-- and its companion,
embryo selection-- or gamete (egg and
sperm) shopping. These are not futuristic practices, which may never become
available; they occur every day and are subsidized by scarce health insurance
resources.
Thus, even if genetic manipulation never
becomes possible, the eugenic age has already begun and is widely accepted by
our consumerist society. If prospective
parents don’t like their unborn’s genes, they can-- and often do-- end the life tested. In California, for example, 90% of fetuses
diagnosed with Down’s syndrome are aborted.
Not in some futuristic hell, but today, we are ending disability
through a medically-mediated rendering of Jonathan Swift’s A Modest Proposal,
by purging the disabled.
In
a society that (rightly, I submit) does not want to execute even murderers, it
seems wrong to effectively impose capital punishment/genocide on the
disabled. Consider further the effects
of genetic screening on the self-perception of the able-bodied. How does it feel to know you were born
because you met a quality control inspector’s-- and your parents’-- standards?
What happened to unconditional love?
Moreover,
McKibben says nothing about how reprotech already affects the perception of
other beings and basic kinship or solidarity.
Despite vast demographic, ideological and personality differences, until
thirty years ago, humans shared a common, mysterious origin in the union of a
woman and a man. This is no longer universally the case. As life is
increasingly manufactured, has it become less awesome, more just another of
someone else’s possessions?
With its multi-embryo production, IVF already
enables parents to select between embryos for
a number of traits, including sex and disability. And, despite their
backgrounds, sperm and egg shoppers display distinct preferences for gametes
from tall, conventionally attractive gamete sellers with much formal
education. This sounds like design to
me.
McKibben tersely suggests that eugenic
abortion (he avoids that label) or embryo selection could be legislatively
limited to those with genes for “life-or-death” diseases. That proposal does
not inspire support.
First, who can say that a disabled
or a relatively brief life-- even one with considerable suffering– is not worth
living? And, as Bryan Appleyard pointed
out in his work of eerily similar title,
Brave New Worlds: Staying Human in a Genetic Future, (1998), by seeing--
and maybe even helping--those with disabilities, the rest of us become more
appreciative and more “human” ourselves.
Further,
the short life standard won’t be nearly broad enough for our society. Most
parents will abort fetuses or de-select
embryos whose genes suggest they’ll someday have MS, ALS or Huntington’s. These conditions seldom kill, or even
afflict, the young. Besides, as McKibben
observes, the lines between disease and trait or cure and enhancement are quite
blurry. What will be the legislative
status of embryos that have genes for schizophrenia or obesity? Depression?
Slow-wittedness?
Near-sightedness? Even limiting either genetic
manipulation or embryo selection for seemingly esthetic purposes seems
impossible, given society’s strong support for reproductive choice. Abortion and fertility treatments are
provided without limitation-- and
seemingly supported by McKibben and the PC audience for which he writes--
because these practices give adults what they want. If we support a woman’s choice to abort a
child because it would keep her from finishing college on schedule, from where
will we draw the moral capital to say she must carry to term a child destined
to have Down’s, cerebral palsy, or even big ears? The vast majority of parents
allowed to choose between having a fully capable (or perhaps, ultracapable)
child, on the one hand, or casting a diffuse vote for an already attenuated
democracy on the other, will serve themselves, not the larger group. As
embryo selection increases, the
pressure to have “perfect” kids will only intensify.
So,
to the future. While breakthroughs in genomic interpretation may not be
imminent, it seems likely that a few decades and a few billion dollars worth of
computer-aided research will yield many more linkages between genotype and
phenotype. The number of features for which a parent can select will increase
commensurately. While allowing, per Neil
Holtzman, author of Genohype: The Overselling of Genetics, for some
incorrect predictions in individual cases, on a population-wide basis, genetic
screening will cause the social stratification and personal alienation that Mr.
McKibben fears, even without the genetic manipulation he foresees. All we have to do to advance this dystopia is
more of the same: screen embryos and gametes and implant/use those with the traits the parents
want. A society that exalts
individualism and privacy won’t prohibit embryo and gamete selection.
This
dim future, rooted in the present, is more likely than McKibben allows. We are making it happen. That’s not a
compliment.